Painaustralia believes it is vital the public and those personally affected by pain have a strong voice in our policy, submissions, campaigns and key activities.
Here you will find current calls from Painaustralia for consumer input.
Expression of Interest
Healthcare Improvement Unit’s High Benefit Care at End of Life Project (HBCEL) invites expressions of interest from clinicians, consumers and other stakeholders with relevant interest and expertise to participate in an Advisory Group that will support development of Goals of Care and Comprehensive Care Planning resources in Queensland.
Advisory Group requirements
Members of the HBCEL Advisory Group will be required to:
• review a consultation paper
• attend 3 meetings
o Wednesday 8 April (morning - time TBC, videoconference / in-person)
o Wednesday 6 May (in-person morning workshop in Brisbane, funding for travel available)
o Wednesday 3 June 2020 (morning - time TBC, videoconference / in-person)
• provide expertise, advice, support and feedback in the planning, implementation and evaluation of the Goals of
Care and Comprehensive Care Planning approach and resources
• support collaboration and cooperation across the system to enable uptake of the resources
• participate in ad hoc discussions over email and by telephone.
Please note that membership on the AdvisoryGroup is by voluntary commitment only. Remuneration will not be provided for time spent on activities associated with the Advisory Group unless special considerations are confirmed prior to commencement.
In August 2019, the Queensland Clinical Senate (QCS) meeting aimed to identify and prioritise potential low benefit care/interventions, concluding with a suite of recommendations for change, described in the QCS Meeting Report. Queensland Health has translated the QCS Meeting Report recommendations into the Choosing Better Care
Together (CBCT) project, which aligns with the 2019 Ministerial priority area of Value: Delivering what matters. CBCT comprises workstreams to enable sustainable large-scale impact based on cultural change. High benefit care at end of life was identified as one of these priority area workstreams.
HBCEL objectives and outcomes
Objectives and outcomes of the High Benefit Care at End of Life Project include:
• development of co-designed Goals of Care and Comprehensive Care Planning clinical resources that will guide multidisciplinary clinicians to deliver patient-requested care in the last hours, days, weeks and months of life, in alignment with:
o their expressed and evolving priorities, values and preferences including those identified through advance care planning
o the person’s clinical context—including likely prognosis, patterns of disease trajectory, and achievable and realistic clinical outcomes.
• identification of clinical and patient cohorts in which to pilot and implement the Goals of Care and Comprehensive Care Planning resources
• addressing areas of consumer involvement in shared decision-making and low value health care in line with projects such as Choosing Wisely
• assisting Hospital and Health Services to meet accreditation requirements of Standard 5 of the National Safety and Quality Health Service Standards.
To be considered for membership on the HBCEL Advisory Group, please complete the attached Expression of Interest form. EOI closes Wednesday 4 March 2020. Successful applicants will be contacted soon after applications close. Please contact Haley McNamara (High Benefit Care at End of Life Project Manager) at CareAtEOL@health.qld.gov.au
or (07) 3646 7310 to submit an EOI or for all enquiries.
Health consumers and/or carers are invited to take part in a project aimed at educating the public and medical professionals about Queensland’s real-time prescription monitoring system, called QScript.
Insight is seeking to partner with consumers and/or carers who have lived experience of persistent pain, anxiety, sleep problems or Attention Deficit Hyperactivity Disorder (ADHD). Consumers will have the opportunity to participate in the development of education and communication relating to Queensland’s new real time prescription monitoring system, QScript.
This opportunity would suit a consumer or carer representative:
For more information, please read the Terms of Reference here. To apply, please download and complete this consumer application form and return to email@example.com by 5pm Tuesday 28 January 2020
The International Association for the Study of Pain (IASP) has reviewed the current definition of pain that has been widely used for a number of years by many diverse groups globally. The IASP Definition of Pain Task Force is ready to release a new proposed definition of pain and accompanying notes. The proposed new definition of pain is the result of careful discussion, review, and participation from all Task Force members in close coordination with the IASP Council.
Current Definition of Pain:
An unpleasant sensory and emotional experience associated with actual or potential tissue damage, or described in terms of such damage.
Current Accompanying Notes:
The inability to communicate verbally does not negate the possibility that an individual is experiencing pain and is in need of appropriate pain-relieving treatment. Pain is always subjective. Each individual learns the application of the word through experiences related to injury in early life. Biologists recognize that those stimuli which cause pain are liable to damage tissue. Accordingly, pain is that experience we associate with actual or potential tissue damage. It is unquestionably a sensation in a part or parts of the body, but it is also always unpleasant and therefore also an emotional experience. Experiences which resemble pain but are not unpleasant, e.g., pricking, should not be called pain. Unpleasant abnormal experiences (dysesthesias) may also be pain but are not necessarily so because, subjectively, they may not have the usual sensory qualities of pain. Many people report pain in the absence of tissue damage or any likely pathophysiological cause; usually this happens for psychological reasons. There is usually no way to distinguish their experience from that due to tissue damage if we take the subjective report. If they regard their experience as pain, and if they report it in the same ways as pain caused by tissue damage, it should be accepted as pain. This definition avoids tying pain to the stimulus. Activity induced in the nociceptor and nociceptive pathways by a noxious stimulus is not pain, which is always a psychological state, even though we may well appreciate that pain most often has a proximate physical cause.
Proposed New Definition of Pain:
An aversive sensory and emotional experience typically caused by, or resembling that caused by, actual or potential tissue injury.
Proposed Accompanying Notes Section:
Painaustralia will be providing input to the IASP’s consultation. Please provide your comments and feedback to firstname.lastname@example.org by 6 September 2019.
Painaustralia believes it is vital the public and those personally affected by pain have a strong voice in our policy, submissions, campaigns and key activities. We are always looking for more consumers to join our broad network, your input is pivotal to our work. If you would like to participate, please follow the link below:
The Language Guidelines for Chronic Pain Management are in their final revision following extensive feedback from people living with pain and those working in the sector.
The Guidelines aim to help media, consumers, health care providers, government, other industry stakeholders and the general community to use accurate and sensitive language when discussing chronic pain and those who live with it.
Closed Painaustralia surveys:
The Therapeutic Goods Administration was seeking input on a proposal to introduce a Unique Device Identification (UDI) system for medical devices in Australia. Painaustralia gathered consumer opinions of the UDI proposal as well as thoughts on medical devices in general to guide Painaustralia's submission. February, 2019