Painaustralia is Australia’s leading pain advocacy body working to improve the quality of life of people living with pain, their families and carers,
and to minimise the social and economic burden of pain on individuals and the community.
Painaustralia Shingles Survey
Painaustralia is committed to advocating for and empowering consumers who live with chronic pain and to do that we want to understand the impact it can have on your lives.
We are inviting anyone who has had shingles or has had a family member who has had shingles to take part in the following survey so we can understand more about the pain associated with the virus.
The survey takes about 15 minutes to complete. All responses are confidential. Survey results will be reported as summary data; no identifiable information will be used.
One in three Australians lives with a debilitating musculoskeletal condition like back pain, arthritis or one of 150 other painful muscle, bone and joint conditions. A 2020 survey of 3453 consumers by peak health body Musculoskeletal Australia (MSK) found the majority suffer in silence because their conditions are not physically visible.
A new survey from Musculoskeletal Australia in partnership with Painaustraila is hoping to life “cloak of invisibility” and give those impacted a stronger voice on the issues that affect them.
The 2023 National Musculoskeletal Consumer is open until 31 December and can be accessed here.
Online Consumer forum - Is there hope for long term pain?
Painaustralia held an online forum asking, 'Is there hope for long term pain?'. Watch as we were joined by two of our consumers who shared their story and how they live with hope and the health professionals that work with consumers with chronic pain giving them the skills and treatment to manage their pain to be able to continue to do the activities they love to do.
Last week Painaustralia gathered together with consumers, politicians, and members of the pain sector on the lawns of the Australian Parliament House in Canberra to ask for better multidisciplinary care so that all people in chronic pain can access the allied health and treatment services they need.
At our event, we asked the Federal Government to provide funding to increase the number of allied health visits to 10 per year.
We want to thank the many politicians who attended and spoke at our event, our sponsors, and most importantly the consumers who shared their stories on the day.
Painaustralia also held a showcase inside Parliament House attended by various politicians and health department officials to demonstrate how multidisciplinary care is carried out.
We want to thank all those who attended and supported us for helping make this such a successful day!
The youngest member of our Consumer Advisory Group, Benjamin Nihill, speaks to CEO Giulia Jones about his pain story.
Despite facing a challenging setback in 2020 during his ADF training, when he got diagnosed with fibromyalgia, Ben has demonstrated remarkable resilience and rebuilt his life from the ground up.
His story serves as a testament to the power of determination and the ability to overcome obstacles.
Our Latest Media Release
One in 3 at risk of shingles and chronic pain – consumer survey launched.
27 November 2023
Painaustralia is today launching a national survey for consumers who have been affected or whose relatives have been affected by shingles and the pain that comes with the condition.
One in three Australians are at risk of developing shingles and nearly all adults over 50 carry the inactive virus that causes shingles. The risk of shingles increases as we age.
Shingles is caused by the Varicella zoster Virus, the same virus that causes chickenpox in earlier life.
One of the most debilitating effects of shingles is neuralgic pain that can go on for months after any rash caused by the virus has disappeared making life very difficult.
Painaustralia CEO Giulia Jones said:
“Many people don’t realise that chronic pain is one of the harshest effects of shingles, we are keen to hear more and let consumers tell us in their own words how this pain has affected their lives,” she said.
“We would like to invite people from all over Australia to tell us what it has been like for them and answer the questions,” Painaustralia CEO Giulia Jones said.
“Our hope is to produce a report to shed light on how people with shingles live, the associated pain and how their lives are affected by this condition. Their stories will assist us to raise awareness of the impact of shingles, the importance of the vaccination and reduce the stigma people face with chronic pain conditions.
“Recently the Federal Government announced that the over 65s and some vulnerable people are eligible for a shingles vaccine free under the National Immunisation Program, while this is an excellent initiative, we want to hear from people especially those aged 50-65 who are not yet eligible for a government funded vaccine to see how their work lives have been affected by the pain and discomfort that shingles entails,” Ms Jones said.
The survey will be open for consumers until the beginning of January 2024 and can be found here.
Media enquiries please contact Giulia Jones on 0439 958 298
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