Painaustralia is Australia’s leading pain advocacy body working to improve the quality of life of people living with pain, their families and carers, and to minimise the social and economic burden of pain on individuals and the community.
Talking about Pain - Language Guidelines for Chronic Pain.
The purpose of these Guidelines is to promote the consistent use of appropriate, inclusive and non-stigmatising language when talking or writing about chronic and persistent pain and people living with these pain conditions.
This resource was developed after broad consultation with Painaustralia members. A particular thanks to our consumer networks who provided extensive input and the specific input from our dedicated Consumer Advisory Group who reviewed the guidelines. Also special thanks to Prof Lorimer Moseley who provided important insights.
22 July 2019
Talking About Pain: Our Words Matter
To mark the commencement of Pain Awareness Week, the Minister for Health, the Hon Greg Hunt MP today released Talking About Pain: language guidelines for chronic pain developed primarily by consumers to promote the use of more positive and less stigmatising language when talking or writing about pain and people living with pain conditions.
Painaustralia Consumer Advisory Group Chair, Sister Mary-Lynne Cochrane said; ‘Words matter. As a person who has lived with chronic pain for over 40 years, I have often been defined by my condition, sometimes in very negative ways when being labelled a ‘sufferer’ or ‘victim’. This has sometimes had a big impact on my mood, self-esteem, and levels of depression. Sometimes the words used about my pain and how I was managing it made my experience of pain worse. My condition is one part of me, not who I am.’
Talking about Pain is a resource developed with the support of the Federal Government and aims to provide a guide to those working in the media and general community on the use of appropriate, inclusive and non-stigmatising language when talking or writing about chronic and persisting pain and people living with these pain conditions.
Minister Hunt said; ‘the language we use and the stories we tell can send powerful messages to people living with chronic conditions, either causing distress and further harm or giving people hope and optimism that they can still live a good life even faced with significant physical and mental health challenges.’ This resource is part of the Federal Government’s commitment to implementing the National Strategic Action Plan for Pain Management and is intended to improve the lives of those living with chronic and persistent pain.
Painaustralia CEO, Carol Bennett said; ‘many consumers have told us they are afraid to admit they live with a chronic pain condition for fear of being judged negatively or discriminated against. This resource draws on the experience of those with the first hand knowledge of what can make a difference to improve our community’s understanding of pain and how we can better respond to it’.
Download the National Strategic Action Plan for Pain Management
The National Strategic Action Plan for Pain Management
The National Strategic Action Plan for Pain Management will provide a key step towards a national and holistic policy framework that will support consumers, health practitioners and the wider community to improve the quality of life for people living with pain, their families and carers and minimise its impact.
To download Cost of Pain Report, click on the image
Cost of Pain Report
In the most comprehensive financial analysis of chronic pain in Australia to date, The cost of pain in Australia report reveals the staggering cost of chronic pain on Australian lives and the economy. A cost set to rise if immediate action is not taken.
More than three million Australians live with chronic pain which significantly impacts on their ability to work, sleep and maintain relationships.
As a nation the pain price tag is already $139 billion and will rise to more than $215 billion by 2050.
Painaustralia's The cost of pain in Australia report and National Strategic Action Plan for pain management table a number of pathways to address this burgeoning issue.
Painaustralia is proud to participate in the 2018 Invictus Games in Sydney. The Games celebrates the spirit of injured service men and women, who have been challenged and tested but not overcome. Despite their many triumphs, pain remains a common thread binding these men and women, all of whom live with life-changing injuries, both visible and invisible. Painaustralia welcomes the opportunity to participate at ‘An Unconquerable Mind: a discussion on veterans’ mental health’, a topic which is so closely tied with all forms of pain.
Painaustralia CEO Carol Bennett says “We do need to monitor people and know what is happening with opioid use across the country, but there is little point in just monitoring the problem. What we need to do is put in place the solution. We need to see better pain management"