The Accessible Product Design Alliance has released a statement calling for changes in products and packaging design to assure equal accessibility among consumers, including those with disabling disorders such as multiple sclerosis (MS).
Composed of 11 nonprofit health consumer organizations in Australia and New Zealand — including MS Australia — the alliance recognizes how difficulties with accessing packaged products can “cause day to day frustration for people without disability, but for those who have a chronic condition or a disability these products and packaging can become impossible,” according to a statement...
On 14 September 2021, Painauastralia CEO Carol Bennett spoke to Indira Naidoo on ABC Radio’s Afternoons about the obstacles some types of product packaging can present to those living with chronic pain, and promoted the push to create accessible packaging and products.
ABC News 14/09/2021
We learned how the venom of a cone snail can be a potent painkiller when engineered to be put into a tobacco plant, allowing scientists to grow the pain killing medicine in plants by modifying DNA.
“Research like this that shows some promising early results, can actually help us provide some hope for the future” said Painaustralia CEO Carol Bennett.
Painauastralia CEO, Carol Bennett spoke to ABC AM show’s presenter, Nas Campanella, about the obstacles some types of product packaging can present to those living with chronic pain, and promoted the push to create accessible packaging and products. Listen to the full interview here
...On August 6 in Adelaide, Australia, Scali beat the previous record by over an hour, Guinness World Records confirmed. This was his second attempt as he was disqualified after his first try, during which he held a plank for 9 hours and 9 minutes. Officials took issue with the position of his hips, he said...
...Since he broke the record, Scali said he is often asked which record he wants to break next. But he is now focused on continuing to raise awareness for CRPS. He uses his attempts at holding the plank poses for long periods of time as fundraisers and has raised 19,223 Australian dollars (about $14,147) for Painaustralia, an advocacy organization for those dealing with chronic pain...
To coincide with Women’s Health Week, this article on 8 September 2021 from Australian Pharmacist explores why women’s health and chronic pain is often minimised.
Painaustralia CEO Carol Bennett said chronic pain impacts on the daily lives of so many Australian women, who are often stigmatised and have their pain dismissed with very little understanding and research into pain conditions, including period pain and endometriosis.
...CRPS is itself classified as a rare disorder, but advocacy group Painaustralia says statistics show that more than
3.4 million Australians are living with chronic pain from various causes, such
as injury, surgery, migraine, arthritis or conditions like the one Moss has. Yet because this kind of pain is invisible, the impact it has on sufferers is not widely acknowledged or understood. It is this lack of understanding, even from within the healthcare system, that can leave sufferers feeling terrified and alone...
89.7 Eastside FM 04/08/2021
Eric Gyors & Luke Dobrovic from 89.7 Eastside FM interviewed the author of Breaking through the Pain Barrier: The Extraordinary Life of Dr Michael J. Cousins, Gabriella Kelly-Davies Wednesday Drive. Gabriella spoke about living with chronic pain and stressed that a really good communication and education strategy is the best way to get people understand and de-stigmatise chronic pain. Gabrielle also mentioned listed the resources available to people living with chronic pain, including Painaustralia’s Pain Services Directory. The full interview, that covers a range of topics and advice about living with chronic pain, is available here.
...Painaustralia, Australia's peak pain advocacy body, is on Tuesday in Canberra launching a new National Pain Services Directory to help people in need find specialised pain treatments.
Painaustralia CEO Carol Bennett said the directory provided a list of more than 200 pain clinics which treated all types of pain conditions.
"The National Pain Services Directory is a practical resource tool that is not only used by consumers but also by GPs and other health professionals who are looking for evidence based, holistic treatments," she said...
...In some instances, the pain is unexplained. "Chronic pain has been a hidden and invisible condition for many Australians for a long time", says Carol Bennett, CEO of Painaustralia. "Previously, I think it's been very misunderstood and, like mental health, somewhat stigmatised. but I think we're having a revolution because of the sheer numbers of people affected by it."
...Carol Bennett, the chief executive officer of Pain Australia, said the findings were surprising but confirmed what was already known about effective treatment for back pain.
“But we’ve known for some time with low back pain that what we really ought to be doing is get people moving and taking a proactive approach and really that’s the best way of managing it,” Ms Bennett said...
A Sydney University study has found the evidence for paracetamol for many painful conditions is inconclusive and for back pain ineffective. The study looked at the use of paracetamol in 44 painful conditions and found its efficacy has been established for only a handful of conditions and its benefits often modest. Painaustralia CEO, Carol Bennett provides her comments to the ABC on the potential need to shift our mindset on paracetamol as the “go-to” medication if this is the trend we continue to see in the evidence.
A study by University of Sydney researchers looked at the “efficacy and safety of paracetamol for pain relief” in treating 44 painful conditions including knee or hip osteoarthritis, headaches and acute low back pain. For most conditions, evidence regarding the effectiveness of paracetamol is “insufficient for drawing a firm conclusion”. While the evidence for paracetamol’s efficacy in four conditions was moderate to strong, there is strong evidence it is not effective for reducing acute low back pain. See Painaustralia’s board member Sister May-Lynne Cochrane, who has experienced lower back pain nearly 40 years, in the Channel 9 news story here.
...The third project, the Community Education and Awareness Program, is run by Painaustralia and aims to offer people easy access to pain management information. “This is intended to be a trusted source of quality information in one place that enables people to get informed about what’s available out there,” says Carol Bennett, CEO at Painaustralia. The program includes a range of resources and links to research studies, a discussion forum and an app where people can interact and ask questions...
...Leah Dwyer, Painaustralia Consumer Advisory Group Memeber, who became hooked after using the drugs to treat chronic neck pain, said: “When I took these pills, I felt quite like, ‘She’ll be right, I can handle this.’ It gives you a sense of euphoria and control. It’s opium – that’s the part I think people forget. They make you not care about the pain.”
Eventually, Ms Dwyer was taking 15 pills a day. Her life came to revolve around them. But when she quit, she found the pain was not as bad as she had feared and easily treatable with Panadol...
Last June, the Australian government introduced regulatory changes in opioids prescriptions to face this crisis. But restricting access to opioids without offering valid alternatives has left many Australians in pain.
“The challenge is to restrict the uptake and ongoing use of opioids for pain while ensuring patients continue to have access to safe, effective and adequate pain relief,” says Carol Bennett, CEO of national peak body painaustralia. “This study provides some insight into one mechanism for achieving this.”
Sophie ScottABC News interviewed Painaustralia CEO Carol Bennett about new restrictions on the use and availability of opioid medication, particularly for chronic pain management. Many people have been left without access to affordable alternative services, and are finding it very difficult to cope. https://iview.abc.net.au/video/NU2109H048S00
ABC News - 09/03/2021
Mary Lloyd & Sophie ScottABC News interviewed Painaustralia CEO Carol Bennett about new restrictions on the use and availability of opioid medication, particularly for chronic pain management. Here is the full interview! #painaustralia also available on
RACV launches new survey to address driving with chronic pain.
Many drivers can feel their muscles twinge after a long stint behind the wheel but for people with chronic pain, the challenge of driving for prolonged periods can impact their everyday lives. Experts say 14 per cent of Australians – 3.5 million people – suffer chronic pain, but many want to continue to drive.
The Therapeutic Goods Administration (TGA) announced on 15 December a final decision to down-schedule certain low dose cannabidiol (CBD) preparations from Schedule 4 (Prescription Medicine) to Schedule 3 (Pharmacist Only Medicine).
According to a statement released by the TGA this decision allows approved low-dose CBD-containing products (up to a maximum of 150mg/day) for use in adults, to be supplied OTC by a pharmacist, without prescription.
Painaustralia CEO speaks on tighter regulation of opioid use, #COVID19, and broader need for multidisciplinary pain management in Australia in the June 2020 issue of Retail Pharmacy. https://buff.ly/2U7DMPk
Researchers at the University of Sydney have used human stem cells to make pain-killing neurons that provide lasting relief in mice, without side effects, in a single treatment. Prof Paul Glare interviewed https://buff.ly/2U0Fwe9 ( also aired on Channel 10 News)