The High Cost of Pain

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Your Stories

Juliet: Inherited pain condition

neural image web

My pain symptoms started when my menstrual cycle began, at the age of 12. I had blinding pain in my pelvic region, sweating and nausea associated with menstruation. As I got older I also experienced intense back pain, and I would often blackout.

 

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Wanda: Back injury at work

wandaI first incurred a serious back injury at work in 1985. It was not able to be evidence-based for five years (at the time of surgery).

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Peter: Struck by lightning

peterMy first taste of pain and injury was when I was only three years old.We had a car accident and I had my lower lumbar joints damaged as well as whiplash injuries to my neck. No one knew this at the time, though, and by the time I was nine I was having X-rays on my back to find out why I was in so much pain.

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Harry: Pain in Children

Harry PerkinsHarry Perkins, son of Olympic champion swimmer and Painaustralia Director Kieren Perkins OAM, was diagnosed with chronic migraine at the tender age of eleven.

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Kelli: Autoimmune Disease

neural image webWhen I was 25, I was living life to the full. Then, literally overnight, I became ill. It was 15 April 1998, a date I will never forget, when I woke up in severe pain.  I had to crawl on my elbows and knees to go to the bathroom. I had pain in all my joints – it even hurt to breathe.

 

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Jill: Breast cancer pain

jillBreast cancer is a diagnosis heard all too often these days at 13,000 diagnoses a year in Australia.

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Danielle: Childhood pain

danielleIt was during a long jump attempt at my school's athletics try-outs when I was nine that I first hurt myself.As usual, I ran and jumped but as I hit the sand I felt pain in what I thought was my ankle.

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Margaret: Hurt Shopping

margaretThat Friday in June 1990 began like any other Friday – two adults, three teenagers, family pets, all heading out. I was totally unaware that this was the day "Super Mum" would die and life as I knew it would be over.

 

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Aileen: Hurt lifting files

aileenMy injury happened over two days – August 30-31, 2001 – when I was asked to reorganise the office's new filing system.

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Elizabeth: Managing pain

elizabethI was an advisory teacher when I suffered a spinal injury in 2007 that landed me in a Brisbane hospital emergency department.Thanks to a neurosurgeon, I regained the use of my left leg and the crushing pain eased.
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Symantha: Chronic migraines

samAs a chronic migraine sufferer I've lived with pain since I was a small child. With the help of sub-occipital electrodes and an implanted pulse generator (IPG implant) I can now manage my daily pain and rely less on heavy medications.

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Gabrielle*: Chronic migraine

neural image web

I suffer from chronic severe migraine. It started 20 years ago and became a daily

occurrence in 1996, from the time I had two cycling accidents.

 

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Elisabeth: Herniated disc

ElisabethNonnenmacher

For the past four years I've been struggling to cope with a herniated disc condition,

which has not improved much, despite me taking positive action and trying to manage it. The condition gives me severe back pain, which I feel almost every day and every night.

 

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Janet: Crushed by a tree

janetSeptember 23, 2006 was a beautiful, still, sunny autumn day.I was in the UK to visit my elderly mother and other family members and had taken the train to London to visit a friend.

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Gerard:

Sneeze led to neck pain

gerard"Fortunately", the pain from my neck injury was so severe that it was taken seriously from the start.

I have chronic pain from several sources but the most serious and debilitating resulted from a herniated disc at C6-7 caused by, of all things, a coughing spasm.

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Eliza*: The right diagnosis changed my life

neural image web

Prior to becoming a chronic pain sufferer, that is, someone who experiences daily pain for three months or more, I had led a busy life. Post pain, it has been devastating to have to adjust to a vastly different life.

 

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Olivia: Endometriosis

OliviaHamilton

I've suffered bad period pain since I was 15, but it wasn't until my late 20s when

I was diagnosed with endometriosis.

 

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Jacqueline: Hip Pain

Jacqueline Emmett

One day in Year 8 I was playing with some classmates when I hurt my hip. Stuck on the ground and unable to get up, I was taken to hospital by ambulance, but doctors couldn't find anything wrong with me.

 

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Marie: Cycling accidents

marieI had two major cycling accidents in the 1980s which caused a spinal fracture and severe whiplash.I quickly got over the accidents and was fine until the early 1990s when I started to have migraines. This gradually progressed to daily migraines by 1996.

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Renée: Car accident

reneeIn 1962 at the age of 21, Renée was involved in a serious car accident that kept her in an English hospital - in a 40-bed geriatric ward - for nearly two years.

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Dave: Doctor with pain

daveI'd survived the traumas of a major motor car accident, the ignominity of a prostatectomy, and the despair and exasperation of three separate cancers and their harsh therapies, but nothing had prepared me for the greatest challenge of my life, dealing with chronic pain

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Katia: Sport injury

katiaI was nine years old when I damaged the ligaments in my left leg in a hurdling accident.After a year of treatment my leg hadn't healed – in fact the pain had worsened and I was diagnosed with chronic regional pain syndrome.

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Daniel: Car Accident

danielBefore my accident, about six years ago, I worked at a prestige car dealership in Brisbane. This work was physically demanding as well as being quite social. We all had to get on well as it could be quite a pressured environment and humour often kept us going.

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Charmian: Pacing

My pain journey began in 198Charmian6 when I was 17. Unrelated to any incident, I began to experience extreme back pain. I later discovered it was a degenerative disease with no cure, but at the time I thought it could just be 'fixed'.

 

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Peter: Accident at work

PeterPanandfamilyIt happened on 28 August 2008 at 8.28am. Everything after that is a bit of a blur, but the moment the accident happened will be stuck in my memory forever.

 

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Mandy:

Injury caused by phone

mandyMy problems started in the early 1980s with the introduction of computers in most public service departments.In 1986,

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Deb: Reaching under a bed

debI woke up one morning in 1988 with a sore back.As the pain continued to increase, I consulted my general practitioner who referred me to an orthopedic surgeon. After some tests, I was told that there were no problems and that the pain should go away. It didn't.

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Trevor: Injured lifting a child

trevorI injured my neck in 1993 while attending a Scout Jamboree in Canada as a carer for a child with cerebral palsy.My pain symptoms didn't really show up until 1997 when I started getting lots of neck and arm pain.
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Maria: Stress-induced migraine

MariaThornton

I've suffered migraine for about 12 years. Originally I would have a migraine

almost every day, so now I consider myself lucky to get just two a week.

 

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Danielle: Childhood pain

danielleIt was during a long jump attempt at my school's athletics try-outs when I was nine that I first hurt myself.As usual, I ran and jumped but as I hit the sand I felt pain in what I thought was my ankle.


After my jump I couldn't walk and I sat down to watch everyone else but after an hour the pain still hadn't gone away.

 I got someone to help me as I hobbled back to the classroom but it was just too sore and I ended up in tears. For two weeks I couldn't walk properly so I went to my GP.

He was puzzled about what I had actually done so he sent me for an ultrasound that showed I had Achilles tendonitis. I was put on anti-inflammatory tablets and referred to a physiotherapist.

He treated me at least once a week for a month but there was no improvement and he wasn't sure what more he could do. I went back to my doctor and he referred me to a sports doctor. He also had difficulties diagnosing the problem with my foot but suggested cortisone might help.

I then had an MRI scan which showed a thickening of the Achilles tendon. My mum was concerned about me having cortisone injections so we stopped them.

My GP then referred me to a paediatric orthopaedic specialist who examined my leg. As soon as he touched it he knew it was a condition called reflex sympathetic dystrophy (RSD).

Straight away he wrote a referral for me to see a pain specialist at the Royal Children's Hospital pain clinic.

He took some photos of my leg, as it had completely wasted away and it was blue, hairy and cold. Then he sent me to have a scan which showed that the bone in my lower leg was demineralising and that it had a decreased blood supply. This had made it hairy, blue/cold and a lot smaller than the other leg.

I then had a lumbar sympathetic nerve block which instantly helped – all of a sudden my leg was warm and pink. It was magic really. If I hadn't had it done I would have lost my leg.

I had never been in hospital so it was a really different experience for me. I was put in a room with two other people but I was shy and didn't really talk much.

The first night after my nerve block it was hard to sleep and I was missing my mum very much. It was strange having nurses coming in through the night to check my blood pressure.

It was a different story during the day. I could walk around and find things to do. The hospital has a Starlight room which was really good and I remember making a cup with my name on it. Just the change of atmosphere was something I enjoyed.

My mum came and visited me in hospital every day from Cranbourne. I really enjoyed doing my rehabilitation with the physiotherapist even though getting my leg back to its normal size was hard work. I had to keep going back to the hospital for rehab after I was discharged.

Mum deserves the real thanks for what she did during this hurdle in my life. She took me to every doctor's appointment and was determined to get to the bottom of the problem. She also gave me the best support.

The pain in my leg had a big impact on my life. I was unable to participate in my regular after-school activities, such as squad swimming and dancing which was very upsetting for me. It felt like I couldn't do what I wanted or have any fun. I wanted to be normal and to be able to spend time with my family.

I was on crutches for 12 months and found it very hard to interact with my friends. Being nine and having this happen was really hard. It felt like my friends wouldn't talk to me or would just run off because I couldn't catch up.

I had to miss school and miss out on what kids do best - play. It was very hard for me to adapt to the changes of not being able to do everything that I used to. I also had to change my lifestyle to fit what I could manage on crutches and I was relying on other people for more help most of the time.

I was always worried it wouldn't get better. It was like I had given up on myself, especially when so many doctors didn't know what was wrong.

But all that changed, thanks to the pain management team who knew what to do.

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