The High Cost of Pain

Subscribe to eNews

 

SIGN UP

to Painaustralia eNews
for the latest news and
information about pain.

 

Your Stories

Eliza*: The right diagnosis changed my life

neural image web

Prior to becoming a chronic pain sufferer, that is, someone who experiences daily pain for three months or more, I had led a busy life. Post pain, it has been devastating to have to adjust to a vastly different life.

 

Read More...

Deb: Reaching under a bed

debI woke up one morning in 1988 with a sore back.As the pain continued to increase, I consulted my general practitioner who referred me to an orthopedic surgeon. After some tests, I was told that there were no problems and that the pain should go away. It didn't.

Read More...

Juliet: Inherited pain condition

neural image web

My pain symptoms started when my menstrual cycle began, at the age of 12. I had blinding pain in my pelvic region, sweating and nausea associated with menstruation. As I got older I also experienced intense back pain, and I would often blackout.

 

Read More...

Elisabeth: Herniated disc

ElisabethNonnenmacher

For the past four years I've been struggling to cope with a herniated disc condition,

which has not improved much, despite me taking positive action and trying to manage it. The condition gives me severe back pain, which I feel almost every day and every night.

 

Read More...

Kelli: Autoimmune Disease

neural image webWhen I was 25, I was living life to the full. Then, literally overnight, I became ill. It was 15 April 1998, a date I will never forget, when I woke up in severe pain.  I had to crawl on my elbows and knees to go to the bathroom. I had pain in all my joints – it even hurt to breathe.

 

Read More...

Jacqueline: Hip Pain

Jacqueline Emmett

One day in Year 8 I was playing with some classmates when I hurt my hip. Stuck on the ground and unable to get up, I was taken to hospital by ambulance, but doctors couldn't find anything wrong with me.

 

Read More...

Jill: Breast cancer pain

jillBreast cancer is a diagnosis heard all too often these days at 13,000 diagnoses a year in Australia.

Read More...

Dave: Doctor with pain

daveI'd survived the traumas of a major motor car accident, the ignominity of a prostatectomy, and the despair and exasperation of three separate cancers and their harsh therapies, but nothing had prepared me for the greatest challenge of my life, dealing with chronic pain

Read More...

Janet: Crushed by a tree

janetSeptember 23, 2006 was a beautiful, still, sunny autumn day.I was in the UK to visit my elderly mother and other family members and had taken the train to London to visit a friend.

Read More...

Symantha: Chronic migraines

samAs a chronic migraine sufferer I've lived with pain since I was a small child. With the help of sub-occipital electrodes and an implanted pulse generator (IPG implant) I can now manage my daily pain and rely less on heavy medications.

Read More...

Mandy:

Injury caused by phone

mandyMy problems started in the early 1980s with the introduction of computers in most public service departments.In 1986,

Read More...

Wanda: Back injury at work

wandaI first incurred a serious back injury at work in 1985. It was not able to be evidence-based for five years (at the time of surgery).

Read More...

Katia: Sport injury

katiaI was nine years old when I damaged the ligaments in my left leg in a hurdling accident.After a year of treatment my leg hadn't healed – in fact the pain had worsened and I was diagnosed with chronic regional pain syndrome.

Read More...

Charmian: Pacing

My pain journey began in 198Charmian6 when I was 17. Unrelated to any incident, I began to experience extreme back pain. I later discovered it was a degenerative disease with no cure, but at the time I thought it could just be 'fixed'.

 

Read More...

Daniel: Car Accident

danielBefore my accident, about six years ago, I worked at a prestige car dealership in Brisbane. This work was physically demanding as well as being quite social. We all had to get on well as it could be quite a pressured environment and humour often kept us going.

Read More...

Margaret: Hurt Shopping

margaretThat Friday in June 1990 began like any other Friday – two adults, three teenagers, family pets, all heading out. I was totally unaware that this was the day "Super Mum" would die and life as I knew it would be over.

 

Read More...

Renée: Car accident

reneeIn 1962 at the age of 21, Renée was involved in a serious car accident that kept her in an English hospital - in a 40-bed geriatric ward - for nearly two years.

Read More...

Danielle: Childhood pain

danielleIt was during a long jump attempt at my school's athletics try-outs when I was nine that I first hurt myself.As usual, I ran and jumped but as I hit the sand I felt pain in what I thought was my ankle.

Read More...

Harry: Pain in Children

Harry PerkinsHarry Perkins, son of Olympic champion swimmer and Painaustralia Director Kieren Perkins OAM, was diagnosed with chronic migraine at the tender age of eleven.

Read More...

Elizabeth: Managing pain

elizabethI was an advisory teacher when I suffered a spinal injury in 2007 that landed me in a Brisbane hospital emergency department.Thanks to a neurosurgeon, I regained the use of my left leg and the crushing pain eased.
Read More...

Gabrielle*: Chronic migraine

neural image web

I suffer from chronic severe migraine. It started 20 years ago and became a daily

occurrence in 1996, from the time I had two cycling accidents.

 

Read More...

Peter: Struck by lightning

peterMy first taste of pain and injury was when I was only three years old.We had a car accident and I had my lower lumbar joints damaged as well as whiplash injuries to my neck. No one knew this at the time, though, and by the time I was nine I was having X-rays on my back to find out why I was in so much pain.

Read More...

Gerard:

Sneeze led to neck pain

gerard"Fortunately", the pain from my neck injury was so severe that it was taken seriously from the start.

I have chronic pain from several sources but the most serious and debilitating resulted from a herniated disc at C6-7 caused by, of all things, a coughing spasm.

Read More...

Trevor: Injured lifting a child

trevorI injured my neck in 1993 while attending a Scout Jamboree in Canada as a carer for a child with cerebral palsy.My pain symptoms didn't really show up until 1997 when I started getting lots of neck and arm pain.
Read More...

Marie: Cycling accidents

marieI had two major cycling accidents in the 1980s which caused a spinal fracture and severe whiplash.I quickly got over the accidents and was fine until the early 1990s when I started to have migraines. This gradually progressed to daily migraines by 1996.

Read More...

Olivia: Endometriosis

OliviaHamilton

I've suffered bad period pain since I was 15, but it wasn't until my late 20s when

I was diagnosed with endometriosis.

 

Read More...

Maria: Stress-induced migraine

MariaThornton

I've suffered migraine for about 12 years. Originally I would have a migraine

almost every day, so now I consider myself lucky to get just two a week.

 

Read More...

Peter: Accident at work

PeterPanandfamilyIt happened on 28 August 2008 at 8.28am. Everything after that is a bit of a blur, but the moment the accident happened will be stuck in my memory forever.

 

Read More...

Aileen: Hurt lifting files

aileenMy injury happened over two days – August 30-31, 2001 – when I was asked to reorganise the office's new filing system.

Read More...

Renée: Car accident

reneeIn 1962 at the age of 21, Renée was involved in a serious car accident that kept her in an English hospital - in a 40-bed geriatric ward - for nearly two years.


Regulations meant she was unable to see her baby son as she recovered from major surgery following which she was treated with morphine and later aspirin coupled with barbiturates to help her sleep.

While in hospital, Renée's famous father Sir Eugene Goossens, the chief conductor of the Sydney Symphony Orchestra and director of the Sydney Conservatorium of Music, died. Renee was devastated to hear this news on the hospital radio while lying helplessly in bed.

When she was finally able to leave hospital, Renée's husband left her for his pregnant girlfriend. Wheelchair-bound and with a two-year-old toddler to raise, Renée discovered that a pram made a good walking frame. She used it to walk every day to get strong, beating the odds to be able walk unaided again.

She managed for about 20 years without a wheelchair until her spine collapsed while lifting a computer. Renée has required a wheelchair since 1994.

Her pain requires percutaneous neurotomies to the cervical spine twice yearly. These are done at Prince of Wales Hospital by "the wonderful Professor Matthew Crawford". She said that often nursing staff and some registrars did not understand that additional pain medication was required post-surgery.

"This procedure is painful and frequently hospital notes post-surgery have not always been signed off on, meaning I am denied even the medication I have at home," Renée said. "This is a very common occurrence for almost all chronic pain patients and must be addressed."

Since returning definitively to Sydney in 2001, Renée has had 15 such procedures, all requiring four days' hospitalisation and time off her various voluntary government committee duties.

She said that the treatment and care that enables her to participate in community life, "so vital to one's feeling of belonging and also usefulness", is ongoing and will be for the rest of her life. Like many other sufferers of chronic pain, she remains unable to work for financial gain due to bad days as well as good ones.

"I have had to endure the much disliked 'You look perfectly alright to me' sneer from those who do not know what an effort it is even to get dressed let alone to be out and working for a few hours each day," Renée said.

"The National Pain Summit is hoping to address, amongst other issues, the fact that many of the 3.2 million Australian sufferers of chronic pain are only able to work as volunteers as their condition is too unstable to allow for paid work. This is a fact of life they may accept but also adds to the difficulties of financial management."

It took Renée five and a half years of research and forty five years of living with pain before she wrote Pain Management: learning to live with pain in which she shares not only her own coping strategies, but those of over one hundred families she has interviewed in England, France and Australia. It also includes the advice of medical practitioners and complementary therapists.

Pain Management is a practical guide for families suffering from physical and emotional pain and includes insights on how to recognise the right doctor or specialist, the medical management of pain, methods of distraction from pain for adults and children and pets as therapy.

Pain Management and other information and Renee's other reflections on pain management can be found at http://reneegoossens.com

"There is no family anywhere in the world who has not experienced pain, be it physical, emotional or in the form of grieving for a loved one," says Renée.

Powered by: natiki.com.au