The High Cost of Pain

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Your Stories

Gabrielle*: Chronic migraine

neural image web

I suffer from chronic severe migraine. It started 20 years ago and became a daily

occurrence in 1996, from the time I had two cycling accidents.

 

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Jacqueline: Hip Pain

Jacqueline Emmett

One day in Year 8 I was playing with some classmates when I hurt my hip. Stuck on the ground and unable to get up, I was taken to hospital by ambulance, but doctors couldn't find anything wrong with me.

 

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Eliza*: The right diagnosis changed my life

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Prior to becoming a chronic pain sufferer, that is, someone who experiences daily pain for three months or more, I had led a busy life. Post pain, it has been devastating to have to adjust to a vastly different life.

 

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Wanda: Back injury at work

wandaI first incurred a serious back injury at work in 1985. It was not able to be evidence-based for five years (at the time of surgery).

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Harry: Pain in Children

Harry PerkinsHarry Perkins, son of Olympic champion swimmer and Painaustralia Director Kieren Perkins OAM, was diagnosed with chronic migraine at the tender age of eleven.

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Aileen: Hurt lifting files

aileenMy injury happened over two days – August 30-31, 2001 – when I was asked to reorganise the office's new filing system.

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Dave: Doctor with pain

daveI'd survived the traumas of a major motor car accident, the ignominity of a prostatectomy, and the despair and exasperation of three separate cancers and their harsh therapies, but nothing had prepared me for the greatest challenge of my life, dealing with chronic pain

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Charmian: Pacing

My pain journey began in 198Charmian6 when I was 17. Unrelated to any incident, I began to experience extreme back pain. I later discovered it was a degenerative disease with no cure, but at the time I thought it could just be 'fixed'.

 

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Deb: Reaching under a bed

debI woke up one morning in 1988 with a sore back.As the pain continued to increase, I consulted my general practitioner who referred me to an orthopedic surgeon. After some tests, I was told that there were no problems and that the pain should go away. It didn't.

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Danielle: Childhood pain

danielleIt was during a long jump attempt at my school's athletics try-outs when I was nine that I first hurt myself.As usual, I ran and jumped but as I hit the sand I felt pain in what I thought was my ankle.

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Symantha: Chronic migraines

samAs a chronic migraine sufferer I've lived with pain since I was a small child. With the help of sub-occipital electrodes and an implanted pulse generator (IPG implant) I can now manage my daily pain and rely less on heavy medications.

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Juliet: Inherited pain condition

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My pain symptoms started when my menstrual cycle began, at the age of 12. I had blinding pain in my pelvic region, sweating and nausea associated with menstruation. As I got older I also experienced intense back pain, and I would often blackout.

 

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Mandy:

Injury caused by phone

mandyMy problems started in the early 1980s with the introduction of computers in most public service departments.In 1986,

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Peter: Struck by lightning

peterMy first taste of pain and injury was when I was only three years old.We had a car accident and I had my lower lumbar joints damaged as well as whiplash injuries to my neck. No one knew this at the time, though, and by the time I was nine I was having X-rays on my back to find out why I was in so much pain.

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Daniel: Car Accident

danielBefore my accident, about six years ago, I worked at a prestige car dealership in Brisbane. This work was physically demanding as well as being quite social. We all had to get on well as it could be quite a pressured environment and humour often kept us going.

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Olivia: Endometriosis

OliviaHamilton

I've suffered bad period pain since I was 15, but it wasn't until my late 20s when

I was diagnosed with endometriosis.

 

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Jill: Breast cancer pain

jillBreast cancer is a diagnosis heard all too often these days at 13,000 diagnoses a year in Australia.

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Elisabeth: Herniated disc

ElisabethNonnenmacher

For the past four years I've been struggling to cope with a herniated disc condition,

which has not improved much, despite me taking positive action and trying to manage it. The condition gives me severe back pain, which I feel almost every day and every night.

 

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Katia: Sport injury

katiaI was nine years old when I damaged the ligaments in my left leg in a hurdling accident.After a year of treatment my leg hadn't healed – in fact the pain had worsened and I was diagnosed with chronic regional pain syndrome.

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Marie: Cycling accidents

marieI had two major cycling accidents in the 1980s which caused a spinal fracture and severe whiplash.I quickly got over the accidents and was fine until the early 1990s when I started to have migraines. This gradually progressed to daily migraines by 1996.

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Gerard:

Sneeze led to neck pain

gerard"Fortunately", the pain from my neck injury was so severe that it was taken seriously from the start.

I have chronic pain from several sources but the most serious and debilitating resulted from a herniated disc at C6-7 caused by, of all things, a coughing spasm.

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Kelli: Autoimmune Disease

neural image webWhen I was 25, I was living life to the full. Then, literally overnight, I became ill. It was 15 April 1998, a date I will never forget, when I woke up in severe pain.  I had to crawl on my elbows and knees to go to the bathroom. I had pain in all my joints – it even hurt to breathe.

 

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Peter: Accident at work

PeterPanandfamilyIt happened on 28 August 2008 at 8.28am. Everything after that is a bit of a blur, but the moment the accident happened will be stuck in my memory forever.

 

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Elizabeth: Managing pain

elizabethI was an advisory teacher when I suffered a spinal injury in 2007 that landed me in a Brisbane hospital emergency department.Thanks to a neurosurgeon, I regained the use of my left leg and the crushing pain eased.
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Trevor: Injured lifting a child

trevorI injured my neck in 1993 while attending a Scout Jamboree in Canada as a carer for a child with cerebral palsy.My pain symptoms didn't really show up until 1997 when I started getting lots of neck and arm pain.
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Renée: Car accident

reneeIn 1962 at the age of 21, Renée was involved in a serious car accident that kept her in an English hospital - in a 40-bed geriatric ward - for nearly two years.

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Janet: Crushed by a tree

janetSeptember 23, 2006 was a beautiful, still, sunny autumn day.I was in the UK to visit my elderly mother and other family members and had taken the train to London to visit a friend.

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Margaret: Hurt Shopping

margaretThat Friday in June 1990 began like any other Friday – two adults, three teenagers, family pets, all heading out. I was totally unaware that this was the day "Super Mum" would die and life as I knew it would be over.

 

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Maria: Stress-induced migraine

MariaThornton

I've suffered migraine for about 12 years. Originally I would have a migraine

almost every day, so now I consider myself lucky to get just two a week.

 

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Aileen: Hurt lifting files

aileenMy injury happened over two days – August 30-31, 2001 – when I was asked to reorganise the office's new filing system.


I was moving files – some weighing up to three kilograms - that were suspended and clipped onto rails (not filing cabinets) and being just 4 feet 11 inches tall and working without a ladder or proper equipment, I suffered an injury.


Originally diagnosed with carpal tunnel syndrome, I was told shoulders and arms were hard to treat and to "just take it easy, it will go away".

I changed doctors and by December 2001, thanks to a physiotherapist, I was diagnosed with thoracic outlet syndrome.

I had surgery on January 21, 2002 but this was unsuccessful and caused a condition called allodynia on the front right side of my chest neck and upper arm which caused my skin to be irritated by most materials including the lace on bras, necklaces, collars and by friction when I walked. My reflex sympathetic dystrophy syndrome means I have to hold my chest when I feel vibrations or shaking or when travelling over speed humps.

My pain ranges from burning to icy cold tingling, numbness, electric shock-type sensations, an irritating itch that is too deep inside the skin for anything to help, swelling, heaviness, headaches, tiredness and major pain.

I have tried cold packs and hot packs and various painkillers - oxycontin, panadine forte, endep and so many other medications, I can't remember them all, but I couldn't handle the side-effects.

Treatment has included physiotherapy, hydrotherapy, feldenkrais and occupational therapy. Most of these just irritated my condition although relaxation sometimes helps.

There is not day that goes by when I am not in pain. I am still, to this day, learning to live with it. I go to my doctor sometimes with the hope that there is something else out there that might help ease my pain, but each time I just get a shrug of the shoulders. I know there is nothing, but I live in the hope that one day...

The pain at first made me feel like I was abnormal and going crazy. It cripples me, preventing me from being able to do anything for days. I know people can't see my pain and I get comments that imply I'm faking it. I have put on a lot of weight, going from a size 6 to a 14 because I can't exercise much anymore.

I retreated into myself and became very depressed. I take antidepressants.

The pain prevents me from my great love of drawing and painting and I sometimes have difficulty trying to carry a book to read. I have difficulty picking up and carrying children, let alone my cat. I can't lie flat on my back any more without a sensation of a heaviness and choking.

I lost my office job and I now work in a shop but can only work four hours a day and can't work two days in a row.

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